Thursday, June 22, 2006

Shock

Yesterday we found out I have Neuroendocrine Tumors- a form of cancer. It is located in my lymph nodes in my midgut region and has spread to my bones therefore in stage 4. My oncologist has never seen a case like mine in his 15 years of practice. This type of cancer very rarely occurs in someone under 50 years old and normally attacks the liver- which mine is fine. Also, it is usually very slow growing and mine is advancing rapidly. Next week we will be traveling to Duke University Medical Center to see a oncologist who specializes in this type of cancer.

Emotionally I'm doing okay- I just don't think it's really hit me yet. My family and friends are more upset than I am- which I understand. If it were Thomas instead I would be more upset. It's just all so new......I'm still in shock. Of course I'm worried and anxious but I'm trying to stay positive....I'm glad we know what's wrong and can start treatment.

Please keep me in your toughts and prayers.

118 comments:

Chantelle said...

Oh Alison - you will definitely be in my prayers.

Anonymous said...

Definitely praying for you!

darcy said...

Oh my gosh.. I want to throw up. Cancer makes me ill.. just physically ill. I will DEFINITELY be praying for you.. if you EVER need to talk, sweetie.. call me at 574-238-2428. I know you have an amazing family.. but seriously... I'm there for you if you need anything, babe.

Kat said...

you are defienlty in my prayers!!!! good luck with everything

Elizabeth said...

Hey there alison,
I am a friend of Darcy's and she directed me here...
you will definately be in my prayers.. and it sounds like you have amzing support surrounding you!.. HE will watch over you always =)

christy marie said...

Alison,
I spoke to Darcy today on the phone and she asked if I knew you. It took me a while but once I saw your picture I remembered you instantly from Purdue/Goshen. I'm so sorry to hear about what is happening. You and your husband will definitely be in my prayers. I pray that God has His hand on you during this difficult time and that you can find strength through Him.
Sincerely,
Christy

Sharon said...

Love you....anything you need....we'll be here praying for you and there if you need us.....God give you the strength and the guts and tenacity to beat this thing....

sara said...

I also linked to your site from Darcy's ...and I am so sad for you. I will pray so hard that you are able to beat this. I pray that God will cure your illness.

Anonymous said...

It never ceases to amaze me how people are brought together. I came to your website through Darcy's and couldn't believe who it was, let alone what you are going through right now. I remember seeing you at Hacienda, reminiscing about the Goshen days, Purdue Days, and your budding relationship with Tom. I plan on getting your email from Darcy so we may chat for a moment or two. For now, know that you have all the prayers Brian and I can muster up and all the support of many who know and love you.

johann said...

you are in our prayers here in New York. If there is anything that i or my family can do, name it, and it will be done. We're all pulling for ya.

Jess said...

You are definitely in my thoughts and prayers! I connected to your blog through Darcy's. Take care and stay strong!

RACHEL =) said...

I'm a friend of Darcy's.
Had to stop by to tell you how sorry I am to hear this!!
I'll definitely be praying for you as well as your family.
Take care, and God bless.

Wendy said...

I've read your blog a few times from the link on Darcy's so sorry to hear and I will keep you in my prayers. Remember people will be praying for you and your family. My dad had cancer 6 years ago and his was also very fast growing, but this can be good because chemo works better on fast growing cells.

Anonymous said...

Hi Alison, I visit Penelope's blog regullarly and she directed me here. I send you lots of love and prayers all the way from South Africa!!
Will be thinking of you!

kelly barton art + design said...

morning miz alison....i read
penelopes blog daily. so you know
how i got here! i love reading about all of your advertures together!

hang in there girlie....prayers
and positive thoughts for you and
your families. i have always noticed what a positive force you
are and your husband. that is going to be such a blessing as you go through these life changes.

blessings and healing...kelly

Anonymous said...

i also arrived hear via penelope's blog.

you're in my prayers and best wishes.

Anonymous said...

Sometimes words are so difficult to say, so prayers it'll be. Thanks to Penelope for letting me discover your blog. Kathleen

Delphine said...

I'm also a Penelope reader.

I am not very good with words,
but I join in for caring thoughts and hope you will get better soon.

Take good care of you.

Anonymous said...

You will be in my heart and in my thoughts!

Anonymous said...

Words do seem inadequate. But know that good thoughts and prayers are headed your way from CA.

Anonymous said...

Hi Alison,

I hope all will work out for you... All my best wishes... I read about it in Penelope's blog...

My husband got Papillary Throid Cancer when he was 24, he is 29 now and all healthy... He had a big surgery and radiation treatment at Sloan Kettering Cancer Center in NYC which I highly recommend, he had excellent doctors... He always had very positive spirits and I was the one who got depresed, but we are both fine now...

Please let me know if we can help with anything... It is always good to share... all the best...elif

Anonymous said...

Alison,

I am so glad that you now know what you're fighting against. And if Penelope's words are correct, you'll have quite a bit of spunk (not to mention love and support) to draw upon during your treatment. My most heartfelt wishes for strength during your these next few months.

Anonymous said...

Hi Alison,

I'm a reader of Penelope's blog, and now a reader of yours. My thoughts and prayers are with you. Good luck with this challenge. You seem strong and surrounded by love. It will all carry you through.

Best Wishes,
Wendy

Anonymous said...

I'm a pal of Penelope's, and as soon as she told me the news I said a prayer. I'll be continuing to say them and keep you in my thoughts. xx christine

Michele Melcher Illustration said...

I read Penelope's blog and came over from there. My hopes and good thoughts are with you. Stay strong and fight! You have alot of good people behind you.
All the best,
Michele

Anonymous said...

Hi Alison,
I found you throught Penelope's blog and wanted to tell you that I'll be praying for you and your husband.

mati rose said...

my thoughts and well wishes are with you.

Anonymous said...

So very sorry to hear that you're going through all this. My thoughts and prayers are with you, all the way from winter-y Melbourne. I wish you all the strength, support and faith that you need!..and then some!
A longtime Penelope reader,
Amy

lorna said...

Oh gosh, how incredibly heartbreakingly awful. Our thoughts and prayers are with you and everyone close to you. I can't even imagine what you are going through right now but can just send some love over anyway, just in case.
xx

Anonymous said...

Hi Alison,

I found your link on Penelope's blog. I just wanted to say that I will be thinking about you and you will be in my prayers. I am sure everything will be fine and will live to look back on this day and be so proud of yourself for conquering it.

All my best,
Holly

http://www.hollyhatam.livejournal.com

Anonymous said...

Hi there.

I'm peeking my head in because of my friend Penelope. I am so sorry to hear about this news. I know you will get through it and I am sending you love and prayers. I just read all of the entries on this page alone and can tell that you have a strong support system with your husband as the corner stone.

Wishing you strength through this.

Anonymous said...

Hi Alison,
I don't know you, but I found your story from Penelope's blog. I just wanted to say that I'll be thinking of you and hoping for the best for you and your family.

Anonymous said...

Love and prayers and all the positive thinking in the world from a regular reader of Penelope's. XOXOXOXOXO

Cin said...

hi Alison, very very scary word to hear, I know from experience but learned there is so much nowadays that can be done, my hope and thoughts and prayers to you!

a Penelope reader

Jan said...

Heavenly Father,
Thank you for the privilege of knowing Alison & Tom. I ask you to heal Alison of this disease if it's your will. Please touch her body with your healing. I know you can heal. You know every cell of her body because you formed her in her mother's womb.
Please give Alison & Tom strength, courage, and peace as they navigate this unfamiliar territory of hospitals, Drs and therapies.
Thank you for their strong love which I have witnessed. Bring them closer, help them learn and grow from this and develop stronger character.
Please bring goodness to them through this, and give them joy despite all circumstances.

In Christ's name alone,
Jan

Anonymous said...

Love and prayers from Kent, OH (via Penelope's blog)...!!

Anonymous said...

I don't know you personally, but found your site via Penelope's blog.

I just want you to know that I'll be praying for you and asking God to take care of you and heal you. Nothing is too great for Him! Once again, even though we've never met, we're the same age and we're both married--plus, it seems as though we both like to read!

I know you'll be well taken care of during your treatment and tests and I pray that you begin to heal. You CAN beat this.

-Stephanie

p.s. I have a huge book collection, so if you ever want to borrow a book to read just send me an email and I'll be more than happy to see if I have it and ship it off to you. God bless.

Anonymous said...

You are definitely in my thoughts and prayers.

fp said...

Sending love and hugs. Your positive attitude is deeply humbling. I shall be thinking of you and your family XXX

two trees said...

hi alison,

came to send you love, prayers and strength via penelope's site. this last year i took care of my mother who had leukemia and know how exhausting the journey can be. i'm so sorry for all you are enduring.you are blessed to have such wonderful support around you. keep that positive attitude, i believe it's half the battle!

i know we've never chatted before and i live in NY...but with all my heart, if there is anything that i can possibly do let me know: daisyfaces@yahoo.com i had lots of strangers reach out to me offering an ear, their experience, etc and it was such a blessing. i'd like to pass on that gift in being of help to you if i can.

all the best to you and your husband.
shanna murray
rochester, NY

boho girl said...

you are in my thoughts and prayers, beautiful one.

i can feel your bravery from here. so, so inspiring.

love,
boho

Anonymous said...

I'm visiting from Penelope's blog. I don't know you, and don't mean to presume but I just want to say that don't be afraid to lean on your family and friends, that's what they are here for. I wish that you get through this and live a long, happy, and healthy life.
~finelyspungirl~

Jill H said...

wow, look at all this love!!!
i'm so incredibly sorry to hear your news, i'm a friend of Darcy's & i'm praying for you =) take care.

Anonymous said...

Hey there Alison, another Penelope reader reporting in. Very sorry to hear what you are going through, you will be in my thoughts!

Much love from Holland from Lyanna

Anonymous said...

alison, i am regular penelope reader. today i read her post and i came to your site to visit instantly. please know that i am keeping you in my heart & prayers. i am sending you healing energy. you are not alone. you are held. blessings, meghan

Anonymous said...

Alison... I too am a friend of Lopie's and reguarly see Tom's comments in Coin's blog. I can't imagine what you're feeling, all the feelings you're wrestling with and what lies ahead, but I truly believe that positive thought can create miracles and I know you are surrounded by an abundance of good, powerful, healing love. So tonight I reach out to you with this Buddhist prayer which I have always found achingly beautiful and deeply comforting. I hope it serves you just as well and plwase know my thoughts are truly with you and yours....

ust as the soft rains fill the streams,
pour into the rivers, and join together in the oceans,
so may the power of every moment of your goodness
flow forth to awaken and heal all beings--
those here now, those gone before, those yet to come.

By the power of every moment of your goodness,
may your heart's wishes be soon fulfilled
as completely shining as the bright full moon,
as magically as by a wish-fulfilling gem.

By the power of every moment of your goodness,
may all dangers be averted and all disease be gone.
May no obstacle come across your way.
May you enjoy fulfillment and long life.

For all in whose heart dwells respect,
who follow the wisdom and compassion, of the Way,
may your life prosper in the four blessings
of old age, beauty, happiness and strength.


with love, Melanie (aka Wee)
http://melaniefordwilson.com/blog

jenni said...

Alison, you have my prayers. As you feel like it, please keep us updated as I know all of our prayers will continue.

In the love of Jesus Christ-
Jenni

majamom said...

Dear Alison,
We are all holding you in our Prayers * thoughts. See * feel the infinite Love of healing light around you always.
Namaste,((healing hugs))
MB * Family
blog friend of Penelope =)

sara said...

I've already commented once...linked from Darcy's blog...but I just wanted to check in again. I have prayed for you so many times today. I was at the grocery this afternoon and the little baby behind me was so cute --- someone said , "What is her name?" Her mom said, "Allison." I stopped dead in my tracks and prayed for you again. I am your age and this has rocked me to the core. I adore your love for your husband--it reminds me of mine. I have to believe that God will heal you. I will keep praying and keep checking in. Stay strong.

Sara

Anonymous said...

Alison, my thoughts and prayers are with you. Best of luck and sending you lots of strenght as well.

Unknown said...

I came over from Penelope's blog. I'm sending good thoughts out to you.

Anonymous said...

I came here from Penelope's blog too - I'll be keeping you in my thoughts. I hope the treatment will work well for you.

Michelle said...

Alison,

I am also a reader of Penelope's. You are in my thoughts, heart, and prayers. Be strong, good luck and know a community of strangers you have never met are hoping and wishing the very best for you.

love,
Michelle

Anonymous said...

hey. i also read penelope's site and am sending lots of positivity your way.

Laur said...

We are all praying for you and love you very much. I am glad that Tom can be your strength right now; I know he is hurting too. I love the phone calls of "when are you having babies" and "are you pregnant yet!" But God works in mysterious ways and you should never give up hope on your dreams, no matter what obstacles come your way. (And this one is definitely a high jump) I look forward to the day where we can all get together and look back on this point and praise God for his healing and love.
All my love,
Laur

Anonymous said...

Clicked over from Penelope's blog - and I will pray for you, for healing and strength, for grace to get you through each day. There are no words for how devastating this must be for you and your Love, oh but we will pray!

Anonymous said...

also clicked from Penelope's blog - you are so very lucky to have such support and what appears to be a loving family!! Everything good will serve to help you through this time. I was diagnosed with Stage 4 Ovarian Cancer when I was 27. Also rare for my age, low chances of survival, etc. With the help of a good surgeon, a brilliant oncologist, loving friends and family, and my refusal to let it get me, I survived. I'm almost 46 now and healthy as ever. It can be done! Get involved! Get positive and feel the love of all of us helping pull you through it. It's not all fun, but you can get through it.

Sending healing, comforting thoughts and prayers to you and your family. Bless you.
Dana

Anonymous said...

Hi Alison,

Found you via Penelope's blog. I'm also a survivor - you are now a member of the club none of us ever wanted to join. When things seem bleak, hold on to the hope and the love of those around you. God will give you the strength you need to get through these difficult times.

Sending you love, prayers and good vibes.

island jen said...

Cancer is so crazy. It's amazing how many people it touches. I will be thinking of you and your family and wishing you well during your treatments!

Swirly said...

Greetings...I am a friend of Penelope's and wanted to send my support. Five years ago my ex-husband was diagnosed with Stage Four Hodgkin's Lymphoma and given a 20% chance of survival. After just 12 weeks of initial chemotherapy treatments, the cancer was completely gone and doctors were stunned. Today he is healthy and cancer free. Take ONE DAY AT A TIME and do not give up.

Blessings to you.

Goddess Leonie * GoddessGuidebook.com said...

light and deep healing to you dearheart ~~~~~~~~

blessed be,
leonie

sibyl3 said...

Best of luck and stay strong! It sounds like if anyone can face this head-on, it's you! One thing that may be worth considering is Hipporcrates Institute in Florida. A lot of people have had good results in healing themselves of serious cancers there - although this is not something that everyone is comfortable trying. Anyway, I felt I should pass it on - and I am not affiliated with them in any way. Best of luck and I hope you stay strong in this journey!

Susan Schwake said...

We are sending our prayers and love through this little message here hoping and praying for your speedy recovery. blessings to you - stay strong.
susan
*via penelope

Anonymous said...

Sending you thoughts and prayers...

AscenderRisesAbove said...

Found you through Penelope; I will check back often.
Sending you healing thoughts along with hundreds of others. I looked back through your blog and saw how long you have been having problems. To be misdiagnoised is so incredibly stressful; exhausting; frustrating. It thrills me that so many have taken the time to send you healing energy.

Marieke said...

I am wishing you all the strength in the world!

Anonymous said...

Arrived via Penelope. Sending much love and light your way...will hold good thoughts and send prayers...

claudine hellmuth said...

I found you via Penelope. You are in my thoughts and prayers. Sending you strength, love and healing.

Fernanda Guedes said...

Dear Alison,
I found out about you in Penelope's blog. I hope you don't mind that I am posting here for I don't know you or Penelope.
Be sure that from now on I'll be praying for God to help you and your family in this battle, giving you the strength and serenity to go through this hard time.

Anonymous said...

I too am here via Penelope. My thoughts and prayers are with you. You seem to have a very positive attitude, which is everything in the battle ahead. God bless.

darcy said...

*Alison.. this was what my friend Jes wrote to you on my blog comments...*

Alison, some of the hardest times in our lives end up being the most defining moments. Even when things are hard and unbearable...GOD is near to you and watching over you. Keep your faith close to you and everything else will fall in place.
I WILL be praying for you and for you family. I hope that you are surrounded by supportive people like darcy in every area of your life.
Keep your head head high, and your thoughts positive

*Just wanted to make sure that you read her well-wished.*

Angela Matteson said...

I just heard your story via Penelope's site, and read through your blog. I'm sending you well-wishing vibes and strength and love.

Anonymous said...

Then Jesus answered and said to her, "O woman, great is your faith! Let it be to you as you desire." And her daughter was healed from that very hour.Matthew 15:28

My prayers is with you in the Name of Jesus, amen!

Anonymous said...

Alison,
You are in my prayers and I wish you the very best. You are a very strong woman and I know with all of your strength and your friends and family support you will make it through this most diffucult time. Again, I am thinking of you and will keep you in my prayers today and always.

Love e pie,
Brenda

Anonymous said...

may your heart always find peace as you embark on this struggle....my thoughts are with you and your family.

Courageous Kat said...

Penelope told me about what you're going through. You will certainly be on my mind...sending you a bucketful of loving thoughts.

Lu said...

many blessings and prayers going your way. Hang tough!

Anonymous said...

Hi Alison: I don't know you, and you don't know me. I heard about your plight through Penelope's website. I never post comments to blogs, even though I read them, but just wanted to let you know that I am sending you healing energy. Be well, best wishes, Susan

° said...

alison hi, u will be in my thoughts and prayers. michael

Anonymous said...

i am also here from penelope's site where i love her art. i will hold you up in my little head and heart as you face this. wishing you peace and health and joy, patti

Anonymous said...

Alison

I'm sending love and prayers from New Zealand. God bless and protect you through this difficult time. I'm sure as you draw strength from your love and support you WILL get through this.

flossy-p said...

Australia too! We're also sending you our good vibes, healing light and prayers of protection, along with wishes for peace and strength. Chin up, stay positive.

Seems you've gathered a world wide net of love and well wishes - that's got to have a fair bit of power right there!

Thinking of you,
(another via penelope)
flossy-p .xx.

Anonymous said...

My prayer is for hope and optimism, and that they will outlast any fear or pain.

(also via p.)

Unknown said...

I will pray for you. I wish you hope and strenght during this difficult time.

Catalina said...

All my best wishes to you and your family! Keep fighting!

Anonymous said...

Hang in there Alison and keep fighting. Lots of love to you.

Jessie said...

I'm sending thoughts and prayers your way. Be well, be strong!

Anonymous said...

You will be in my thoughts and prayers. I'm so sorry. I hope you get excellent medical care and conquer this.

Tabuena arts central said...

You don't know me Allison, but my prayers will be with you everyday till you get well...

Cheers
Eric

God Bless You

Kay Aker said...

I will pray for you. I'm believing God for your complete healing.

Anonymous said...

You don't know me. And I don't know you.

But you should know that I am thinking of you and hoping you get well soon.

~Denise

Anonymous said...

Sending you much peace, guidance and healing. Blessings to you and your courageous strengh.

Elena

Anonymous said...

Keep your head up kid. You can fight this.

Anonymous said...

hello, alison. i was on penelope's site looking at her illustration and that is how i arrived here at your blog. i don't know you. but, i will be thinking of you. take care.

Tara said...

You fight, and you fight, and you fight. Never, ever give up...
You are in my prayers.

Anonymous said...

As a recent Cancer survivor, I can only say fight. Fight the sadness. Fight the pain. And most of all, fight the disease. I'll share the things I wish someone had shared with me.

Take Chemo and Radiation as your allies. They might be hideous, but they fight for you. Deep breathing and visualization helped me.

Sleep when you can. Eat when you should. I went macrobiotic and it really helped.

Don't close yourself off to others, but don't let others take over your life either.

It is your life, so ask all the questions in the world, and don't worry about taking up too much of anyone's time.

We are not called survivors for nothing. When you are looking back on your fight with Cancer, know that you fought as you had to, and you won.

You are in my thoughts.

Anonymous said...

I have just stumbled across your blog and read your news. I wish you success with your treatment.

Kelly said...

I came her by way of the lovely Penelope's blog with prayers and positive thoughts. I'm awed by your courage--it will see you through.

Anonymous said...

I came over from Penelope's blog, too. I'm sure this is a stunning diagnosis for you, and even though I don't know you I'm very sorry to hear about it.

Please tell your family to get the book "Share the Care", which will help them organize your care and help all of you keep your sanity in the months ahead. I use this book all the time when I'm coordinating long-term care for cancer patients and their families and friends. It really is incredibly helpful.

Keeping you and yours in my thoughts in Minneapolis...

Anonymous said...

i read about you on penelope's site.
you are a beautiful girl; you do not deserve to have to go through this.
i don't know you but you will be in my prayers.

Anonymous said...

Praying for you...

pinkcoyote said...

alison,

hang in there, sweetie. this is unfair and it must hurt like hell. a little friend of penny's is sending you a big hug. pixie

Majeak Ann said...

I don't know you...but since love is free I am sending you tons of it. Love is all we need to fight back, to live stronger and enjoy each second of your life.

I congratulate you brave woman.

-Marjorie Ann

Anonymous said...

You don't know me, but I linked to your site thru your sis-in-law's blog. Please know that you are not alone. I will pray for you and send you good wishes for a speedy recovery. God bless you!

Anonymous said...

Another reader of Penelope's here, sending you love and good wishes. All the best to you!

InĂªs Rosa said...

I don't know you, but i'm sending all my love to you today.

Anonymous said...

Dear Alison,

I came to this site, after visiting Penelope Dullaghans website.
I want to leave you some words, which allways gave me strenght in sad and hard times.
It´s my favourite song - from Sixpence None The Richer:

Trust in the Lord with all your heart
Lean not on your own understanding
In all of your ways acknowledge Him
And He will make you paths straight
Don't worry about tomorrow
He's got it under control
Just trust in the Lord with all of your heart
And He will carry you through

Lord, sometimes it gets so tough
To keep my eyes on You
When thinks are going rough
But when I turn my eyes up to the sky
And I hear Your voice it says to me

So child do not be weary with the troubles
Of this world I have overcome

–––

God Bless you!
Yours
Sven

Anonymous said...

You are in my thoughts and prayers, Alison. Stay strong...

Michelle from the Philippines

Anonymous said...

Good luck to you. My thoughts and prayers are with you. Sounds like you have a wonderful husband and family. You can beat this!

hemelsgroen said...

I will light a candle for you tonight and I hope its light and warmth will reach you.
Please, don't let it beat you but stay focused on the positive, however hard this will be at times.
I'm with you.

Anonymous said...

Prayers for you and your family, from one of the many voices in the intertwined blogosphere.

Anonymous said...

I'll say a little prayer for you.Know you are being thought of ...

Anonymous said...

Alison, May the Lord give you strength and His peace that passes understanding during this difficult time. I will be praying for you. Hugs- Alisa

Rachael Herbert said...

Sending positive thoughts your way... Hang in there.

AlterKATEtion said...

I have a friend who is a breast cancer survivor, and she said the one thing that kept her going was her mantra:

"If God brings you to it, he shall bring you through it."

I will keep you and your family in my prayers.

Anonymous said...

Dear Alison,

I'm keeping you and your family in my prayers.

When my mom had a mascetomy, we fed on the word on the ipod and it has really helped us. (for His word is health to our bodies and medicine to our bones - Prov 3:8)

Here are some links I thought I'd share:

http://www.kcm.org/media/webcasts/index.php
http://www.kcm.org/studycenter/articles/index.php#health

www.moreonlife.org

I hope they help nourish and strengthen you as you rest in the Lord's blessings and healing.

Love,
MBG

Anonymous said...

Miracles happen every day..and all those cancer survivors will agree that a miracle is just waiting for you...hugs

Deardeedle said...

You can do this, you can. "God only gives us what we can handle" - someone must have thought you were up to the challange. I'll be cheering & praying for you!