This week is chemo week. I was supposed to start on Monday but my platelets were really low so I had to wait till Tuesday to get a platelet transfusion and start chemo. I will also have to get a blood transfusion on Friday. It really isn't fun being here all week but dreading it just makes it worse. I'm feeling really well though.
At my appointment with Dr. Chahin on Monday we talked about stopping chemo! He believes the cancer is stable enough and is slow growing and the chemo is what is bring down all of my blood counts. Thomas wasn't with me at the appointment so we are meeting together with him next Monday to make the final decision. Of course there are consequences- the it could start growing again at a rapid rate and the chemo may not work as well as it is now- but it could stop working even if I stayed on it. There are a lot of what ifs and a lot of praying to be done. Please keep me in your prayers that we make the right decision. I NEVER thought this day would come- to be off of chemo and now that it's here- it really is a hard decision. If I do decide to stop, T and I are going to get really serious about the diet and exercise thing. I have to feel like I have some control instead of just waiting to see what happens. I would still do CT scans once every 6 weeks or whatever I felt comfortable with to monitor the progress. It's such exciting news!
I hope everyone is having a great week! :)
12 comments:
Great news Ali...you seem so happy! I'm sure you and Tom will make the right decision...as hard as it is. Your house looks so cozy and festive I wanna come visit again! I can't believe it's been a year since I was there.
The house looks great! I can see Tom one the argument of where to place the tree this year. That being said...it does look very good where you put it.
As for the good news! I will pray for you and Tom. That you guys have peace of mind with whatever decision you make and that God helps you in your decision. I totally agree with the diet and exercise thing. I am there with ya! I need to do the same!
Your house is undeniably radiant with holiday cheer, and I'm sure your bod will be following suit soon enough... whatever you decide.
I bet you and Tom (and Dr. Chahin) are studying every bit of chemo data you can find... Let us know if you want an extra set of eyes for researching.
Colin
Tough one to research actually. I'd imagine it's a bit like researching russian roulette. We already know what the gun is capable of, and no matter what the chances are, to pull the trigger on a decision like this is daunting. Especially if you don't know if the trigger is staying-on or getting-off chemotherapy.
It is a tough one...but with everyone's prayers for your peace of mnd and his guidence in the decision - you will do the right thing.....you inspire more folks than you know....lvmom
praying for you! I am sure God will guide you both to the right decision.
love laur
Hey Alison!
Your house is so cozy and pretty! I love it! That is such excellent news and I will be praying for you and your husband with your decision. Have a wonderful weekend!
Kelly
Fantastic news, I'm praying for you to make the best decision.
Alison.........
Your home expresses all the love & care that you have put in it.
This is Kimberly's mom and am looking forward to meeting you the week of her pinning ceremony. I read your blog often and enjoy your writings and pictures. You guys do great work.
I hope that your chemo week goes well for you with no problems. I will say my prayers for you and Thomas. Am sure you will make the best decision.
Take care and blessings,
Kathryn
that is such great news, Alison.
whatever you, tom and the doctors decide to do, i know that by just focusing all your love and faith and energy on it, it will turn out to be the right move. i've got you in my thoughts.
love, vanessa
I found you from Penelope's site. I stop in every so often because you are such a beautiful inspiration and your journal has just touch my heart. I just keep thinking what a brave, sweet and energetic person you are.
Mindy Wilson
mwilson.etsy.com
I don't know if it helps...My friend Scott controlled his cancer (Ewing Sarcoma) and it's growth for years via chemo. He also did Tomotherapy (my understanding that it's newer and available here in Madison WI @ UW)and the dr.'s said - if they'd done it earlier....things might have been different.... But Scott did say that for over 10 yrs the chemo off and on every 3-6 months kept things from growing and eventually into remission. So...ya never know! My prayers and our prayer chain is with you and Tom! With God's grace - Tori & Fam in WI.
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