If you've read Thomas' blog you already know the bad news. I had a CT scan done last Friday to see if we were still making progress with the chemo and I'm devastated to say- it's not. The cancer has figured out a way to manipulate its self. Its got a brain of its own thus fighting back against the chemo. The 4 lesions on my liver have also increased in size. Monday was the first time I've cried in front of the doctor. I asked about long term prognosis and he said we need to worry about short term- I'm scared. But positive. I have to be. It's the only thing I have control of. It's great to have family here when bad news comes. They always have positive things to say and help keep my spirits up. We are going to make some changes including getting 2 shots of Sandostatin- one on each side of my upper butt. That is the shot that hurts for about 2 weeks after. How am I going to sleep?! On my head- that's Thomas' suggestion. :) We may also increase the chemo drug that makes my hair thin. If that happens, it will probably fall out. Something I'm prepared for. I plan to have a party with all my closest friends and have each of them shave a strip. Make all my favorite desserts- make it fun. We also are going to start talking to the Duke doctor again about radiation. As Dr. Chahin says, the options are not unlimited. And that's scary.
I'm having such an amazing time with the family. The weather hasn't been so nice though. Cold and rainy. But they've been troopers- even going to the beach this morning in the cold and wetness to collect more shells. They're obsessed with the shells. It's cute. :)
Tomorrow we plan to have 12 friends and family here for Thanksgiving. I can't wait. I'm making my famous chocolate chip cheesecake. The menu is just to die for! And I can't wait to gain 5 pounds! Or maybe 10.
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18 comments:
Stay happy, stay positive. You sound like you are surrounded by good people who love you. The innernet people love you too. Thinking of you...
Happy Thanksgiving, Alison. Your positive spirit is a shining star.
Here are some words for you, "For I know the thoughts that I think toward you (Alison) says the Lord, thoughts of peace and not of evile, to give you a future and a hope. Jeremiah 29:11
I will lift you up continually in my prayers!
I so admire the way you are confronting this, Alison. Your courage and spirit are truly inspiring. Even while acknowleging your fear, you continue to be postitive and grateful and forward looking. I know that you must have dreadful moments, private agonizing moments, even if you don't give voice to them here, and I pray that somehow, in those moments, the abundance of goodwill and love that your family and friends and people you have never really met (like me for instance) but who are willing you better somehow lights in the night like a candle a window, shining to illuminate the path for you and chase the shadows away. With all my heart, Wee xoxo
and p.s. Happy Thanksgiving!!! Stuff yerself silly!
You are truly a hero to me. I know we have never met, but your shining spirit is such an inspiration. I wish you a very happy Thanksgiving! The cheesecake sounds awesome.
Dear Alison~
I send you hugs and tons of good thoughts. You are blessing people you don't even know with your sweetness. You are awesome!
Happy cheesecake!
~Mimi
Alison,
I found you through Penelope and have been reading about your struggles. You are such a brave and amazing soul. I will be praying for you as you focus on the next stage of this battle. You can beat this...and I can't wait to hear that you have.
God bless you and your wonderful supportive husband!
You are incredible - you have an amazing spirit. I am in awe of your ability to be in the moment and to handle all this so well. I've been through a life altering experience with my daughter and I wish I could have had handled it with as much grace, spirit, and beauty as you have. You are truely amazing and I just want you to know my family and I are praying for you. Keep being you your heart is so beautiful - and that cheesecake sound devine!
HUGS!
Hi Alison,
I've been checking your blog (and Tom's) on a regular basis to see how you are doing. I'm sorry to hear that things aren't going well with the original treatment plan. I'm glad that they have a new plan of action to fight harder against the cancer. Hang in there and keep your spririts up.
You're in my thoughts and prayers,
Becky McKee
You are truly AMAZING! You and Thomas are remarkable and have been terrific role models for all of us.
You, Thomas, and your families are in my thoughts and prayers.
Cheers to chocolate chip cheesecake!
Love, Polly
Just sending lots of love to you and Thomas. Stay strong sweetheart.
XXX
Alison....I want to link your blog to mine so that everyone I know will be praying for you...but I don't know how. How do you make certain words so that people can click on them? Teach me, please! (Before I ask you for your help, I guess I should ask you if you mind if I link people to your blog?) Please email me at sarabethfloyd@yahoo.com Thanks!
You are such an inspiration, Alison. I admire the way you have confronted the illness and never backed down. I wish I could live like that in my own every day life!
I will be praying for you. Just keep believing, hoping, and praying. You are NOT alone. Besides your friends and family, God is always with you--and He loves you beyond belief.
Again, keep your chin up and keep that positive attitude.
Much Love,
Stephanie
Hey, staying postive and fighting this thing is 1/2 the battle. You hang in there sweet girl and you can win this fight!
Smooches..
Sending you all of the prayers and positive thoughts you can ever hold! Keep your chin up and know you are being thought about CONSTANTLY!
My prayers to Jesus continue! Your courage and outlook inspire me.
I know that you can bet this you are a very strong person and I like at Alyssa and I see you in her. I call her little all the time now and i just hope that she will countiue to be this strong willed little person just like her Auntie Ali. I love you,
Rene
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